Almost two years ago, Justin noticed that he was having trouble walking straight and sometimes he would just fall down. So, his parent took him see specialists who have confirmed through DNA testing that he has a very rare genetic mutation called Giant Axonal Neuropathy (GAN). Justin is scheduled to be a part of the GAN Natural History Study at the National Institute of Health and will hopefully be chosen to participate in the clinical trial although he will not be in Phase 1 of the trial. Our mission, in partnership with Hannah’s Hope Fund for Giant Axonal Neuropathy, Inc. is to help raise funds to support the development of a treatment and cure for GAN disease, and to be the resource for doctors, scientists and families world-wide.
Justin’s Triumph Over GAN Sponsors