Press Release

Houston Author Celebrates Father’s Day by Donating Book Royalties To GAN Research

HOUSTON – May 27, 2015 – Houston author David Falloure has known the Clark family since their children were in kindergarten together in Bellaire. After Justin Clark (age 14) and his younger sister, Lexi Clark (age 9), were diagnosed with a rare, fatal genetic disease called Giant Axonal Neuropathy (GAN), he wanted to do something to help.

In honor of Father’s Day and in solidarity with Justin and Lexi’s dad, Dave Clark, David Falloure is donating all royalties from Amazon sales of his books, “Brands in History” and “Sheer Will,” sold between June 1 and June 22, 2015 to Justin’s Triumph over GAN. The Clark Family has partnered with the national GAN organization, Hannah’s Hope Fund, in their efforts. All of the funds being donated to Justin’s TRIumph Over GAN are given to Hannah’s Hope Fund to aid research to find a cure for GAN, which is in phase 1 of a clinical trial.

“I wanted to do something in support of Dads, and in particular this one dad. Dave has two kids diagnosed with GAN—it is rare and funds are badly needed to develop a cure. Since only 50 children in the world have GAN, all of their funding for research comes from grassroots efforts like ours,” said Falloure.

“Our family and friends have been so supportive since our children were diagnosed, this is just another great example of our wonderful friends doing everything they can to help us find a cure”, says Dave Clark, dad of Lexi and Justin.

GAN is an inherited condition involving dysfunction of a specific type of protein in nerve cells. Initially, it effects walking, but as the child ages impact becomes more severe—increased loss of sensation, coordination, strength, and reflexes. Hearing, visual and swallowing problems can arise, too. Other more debilitating and life threatening severities gradually develop and life expectancy for GAN children is their early 20s.

In addition to online Amazon sales, Falloure is hosting a book signing in Houston on June 28, 2015 at the Dessert Gallery on the corner of Richmond and Kirby. Falloure will be there from 3 to 5 pm selling and signing books. Dessert Gallery will also donate 10% of food sales during the signing to Justin’s TRIumph Over GAN.

“What better place to gather than the Dessert Gallery, since chocolate is one of the key ingredients of life!” added Clark about the book signing location.

For more information GAN, Justin’s TRIumph and Hannah’s Hope Fund, please visit or To date, the Clarks have raised over $300,000 towards finding a cure for GAN.